Inequalities in child health between tamariki Māori and non-Māori are largely preventable and unnecessary. An example is rheumatic fever, where tamariki Māori are 30 times more likely to contract the disease than non-Māori.
Being ill as a child has a big impact on school attendance and outcomes, and it may cause lifelong disability or illness. There are high costs involved, both for the health system and for society.
To scope traditional and contemporary understandings of ‘whānau consent’ in regards to genetic, tissue and organ testing, collection, donation and banking.
To understand how whānau go about gaining ‘whānau consent’ and what processes may support these conversations.
To scope ways in which we can present information about what helps and hinders whānau discussion about consent in an interactive format for whānau to view, supporting them through an informed consent process for genetic-related testing, treatment and/or research.
What are the cultural, ethical, research, legal and scientific (CERLS) issues that are inherent in research on rongoā Māori plants and healing?
Debate about the misappropriation of information and knowledge in research means that greater care and attention is needed regarding Māori input and participation into research. This is even more important in the area of Rongoā Māori where matters such as inappropriate usage, intellectual property rights and commercialisation of information are of significant concern.
This summer internship joins and contributes to a research project on Māori whānau experience of Hospital Transfers by being involved and undertaking literature review, in depth analysis of interview data and considering and reflecting on their research and the research impact and contribution.